Do you ever wonder when families like ours will stop having to fight for the most basic support our children need? For us, it feels like a battle that has lasted a lifetime. Our son, W, will be 13 this year, and for as long as we can remember, we've been advocating, chasing answers, attending appointments, completing forms, and explaining the same things over and over again. The exhausting part isn't just the fight itself. It's what that fight has done to him. After years of

As the new school year approaches, social media feeds begin to fill with photos of shiny new uniforms, packed lunch ideas, and excited countdowns to the first day back. For many children and families, returning to school brings anticipation and excitement. But for others, the thought of going back can feel overwhelming, exhausting, and anxiety-provoking long before the school gates even open. It's important to remember that not every child experiences the school holidays in t

We're thrilled to announce that Harvey the Hedgehog: Why Don't I Feel Safe? by Lyndsay Critchlow is officially out now!. This beautifully written children's story provides a gentle introduction to the experiences of children with Pathological Demand Avoidance (PDA), a profile within the autism spectrum characterised by an anxiety-driven need to avoid everyday demands and expectations. Harvey the Hedgehog likes knowing exactly what will happen next. So when a new path, a new

There is a phrase I keep hearing at the moment. "Maybe it's worth waiting until we know what's happening with SEND reform." Or worse: "There's no point challenging it now because everything is going to change anyway." Every time I hear those words, my heart sinks. Because while adults debate policy, write reports, hold consultations, and discuss the future of SEND, there are children sitting in classrooms right now who are struggling. Children who wake up every morning with a

I have recently come across some rather shocking statements made regarding pathological demand avoidance (PDA), a term that is often...

I know we are all pretty much feeling this at the moment, and it’s a sentiment that resonates deeply within many families. For some of...

I am pretty much struggling recently with a massive avoidance that seems to permeate various aspects of my daily life. This feeling of being overwhelmed has led me to seek refuge in different distractions, and my very recent avoidance tactic has been to embrace my ADHD side quests. These side quests often manifest as spontaneous interests or projects that capture my attention, pulling me away from the tasks I know I should be focusing on. Instead of tackling my responsibiliti

This has to be my favourite photo of my family. It is in fact the photo from mine and Wedding Day. Each pose shows a different...

Probably one of the greatest driving forces that is seen within Education for all HQ. We often talk about emotions and how adults get and...

This post is more for me than it is for you. Today we had a Paediatrician appointment for W. It was a well-needed appointment. W has...

I thought I would start out my blog by talking about something that significantly affects the life of my family. Anxiety. We as a family...